Mitchell Syndrome in the News and Media
“Living with the Rarest of Rare Diseases”
Watch the award-winning NBC documentary short which introduced the world to Mitchell Syndrome and the disease that now bears his name.
Click HERE to read the online article by NBC reporter Elizabeth Chuck, or on the Youtube link to watch the video.
“Mitchell Syndrome patients and families hope for new treatments after raising $25,000”
Click HERE or on the picture for a video news report and online article following The Foundation’s first Family Summit in Houston, TX.
“Cole’s Story”
NYU film student Amanda Mickwee interviews Matt and Nacole Canning about their son, Cole, and his battle with Mitchell Syndrome.
Click HERE or on the YouTube link to watch Cole’s story, told by Amanda.
“Teen living with rare disease only 17 people in the world have been diagnosed with, family says.”
Click HERE or on the picture for a news report about Trey Garczynski, who was diagnosed with Mitchell Syndrome at 11 years old. (Source: WDAM, by Hannah Hayes and Debra Worley)
“The Rare Case of Ranken Jordan Outpatient Mitchell Herndon”
During his long journey with a mysterious neurological illness, Mitchell Herndon received much of his care from the doctors and therapists at Ranken Jordan Pediatric Bridge Hospital in St. Louis, MO. Get to know Mitchell, his parents, and meet some of the excellent caregivers at Ranken who continue to support the cause.
Click HERE or on the YouTube link to watch his story.
“From The Humble Fly, Great Discoveries Are Made”
Hyunglok Chung, PhD, has found the Drosophila fruit fly a key partner in discovering ultra-rare and previously unknown diseases, as well as developing new treatments for already known maladies.
Click HERE or on the picture for the online article from Houston Methodist Hospital.
“Local boy battling rare, incurable disease that’s impacted less than 20 people”
Meet Cole Canning, an earlier Mitchell Syndrome patient, as he and his family struggle heroically with a new Mitchell Syndrome diagnosis.
Click HERE or on the video link for the online article and news report from FOX29 in Philadelphia.
Washington University Profile: The Mitchell and Friends Foundation
Click HERE or on the picture to read a piece from the Neurology Department at Washington University in St. Louis, highlighting The Mitchell and Friends Foundation and the work we are supporting in the research lab of Dr. Timothy Miller.
