What is the Mitchell and Friends Foundation?

For many years, Mitchell Herndon battled a mysterious neurological illness that had no name or known treatment. His battle ended tragically in October of 2019. But with the information doctors learned from Mitchell and his illness, other children were diagnosed with “Mitchell Syndrome,” and continue their struggle. In honor of his courageous sacrifice and in support of other children with this illness, and with their extensive experience battling this illness, Mitchell’s parents—Matt and Michele Herndon—started the Mitchell and Friends Foundation.

The goals of the Foundation are simple.

First, the Foundation raises awareness of this newly diagnosed disease. As more doctors are aware of this illness and its symptoms, they are able to offer diagnoses and medical treatments more quickly, helping children experience a higher quality of life. The Foundation raises awareness by publicizing the illness on its website, explaining the disease to confused parents, and communicating with doctors and organizations that can help spread the word.

Second, the Foundation promotes research into possible treatments. Medical science has not yet advanced to the point that there is a cure for Mitchell Syndrome. However, doctors and researchers are actively trying to obtain medicines that may help lessen its effects and increase the life span of children and adults with the illness. Additionally, medical technology may someday be available to correct this genetic condition. The Foundation exists to support these efforts, update parents and professionals on the status of new medicines, and offer financial support to laboratories that are researching possible treatments for Mitchell Syndrome.

Third, the Foundation supports families in need. Receiving a diagnosis of Mitchell Syndrome can be a devastating punch in the gut. Parents and children need support, encouragement, and guidance. Some also have physical needs that the Foundation can help with: therapy or disability equipment, or other medical expenses. We exist to do what we can to help people on wh

The Mitchell and Friends Foundation is a 501c3 organization, and operates according to a federally-approved set of Bylaws, and is overseen by a Board of Directors. We are also advised by a team of Scientific Advisors, who provide guidance and input. Learn more about our Scientific Advisors by clicking the link below.

If you are a parent with a child newly diagnosed with Mitchell Syndrome and have a medical, physical, emotional, or spiritual need that you believe the Foundation can help with, please reach out to us using the Contact page.